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Accuracy of routinely collected hospital administrative discharge data and death certificate ICD-10 diagnostic coding in progressive supranuclear palsy and corticobasal syndrome: a systematic review and validation study
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Movement Disorders Clinical Practice, vol. 11, no. 5, pp. 478-487
Recovery of Kidney Function After Acute Kidney Disease - a Multi-Cohort Analysis
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Is the assumption of waning of treatment effect applied consistently across NICE technology appraisals?: A case-study focusing on disease-modifying therapies for treatment of multiple sclerosis
Armoiry, X., Wang-Steverding, X., Connock, M., Grove, A., Clarke, A., Arun, T., Counsell, C., Auguste, P.
International Journal of Technology Assessment in Health Care, vol. 38, no. 1, pp. e83
Inequalities in children's mental health care: analysis of routinely collected data on prescribing and referrals to secondary care
Ball, W., Black, C., Gordon, S., Ostrovska, B., Paranjothy, S., Rasalam, A., David, R., Rowlands, H., Rzewuska, M., Thompson, E., Wilde, K., Butler, J.
Working Papers and Discussion Papers
Outcomes among confirmed cases and a matched comparison group in the Long-COVID in Scotland study
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A multi-layer functional genomic analysis to understand noncoding genetic variation in lipids
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Do we need consent to obtain consent?: Public and participant feedback to using personal health data for recruitment
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Journal of Epidemiology and Community Health, vol. 76, pp. 697-698
Improving children and young people’s mental health services: Local data insights from England, Scotland and Wales
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Commissioned by The Health Foundation. London: The Health Foundation. 38 pages
Harmonization of epidemiology of acute kidney injury and acute kidney disease produces comparable findings across four geographic populations.
Sawhney, S., Bell, S., Black, C., Christiansen, C. F., Heide-Jørgensen, U., Jensen, S. K., Ronksley, P. E., Tan, Z., Tonelli, M., Walker, H. M., James, M. T.
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GBA and APOE Impact Cognitive Decline in Parkinson's Disease: A 10-Year Population-Based Study
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Reforms to improve reproducibility and quality must be coordinated across the research ecosystem: the view from the UKRN Local Network Leads
Stewart, S. L. K., Pennington, C. R., da Silva, G. R., Ballou, N., Butler, J., Dienes, Z., Jay, C., Rossit, S., Samara, A., U. K. Reproducibility Network (UKRN) Local Network Leads
Long-term Effectiveness of Adjuvant Treatment With Catechol-O-Methyltransferase or Monoamine Oxidase B Inhibitors Compared With Dopamine Agonists Among Patients With Parkinson Disease Uncontrolled by Levodopa Therapy: The PD MED Randomized Clinical Trial
Gray, R., Patel, S., Ives, N., Rick, C., Woolley, R., Muzerengi, S., Gray, A., Jenkinson, C., McIntosh, E., Wheatley, K., Williams, A., Clarke, C. E., PD MED Collaborative Group, Counsell, C.
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K., Walker, M., Koistinen, H. A., Chandak, G. R., Yajnik, C. S., Mercader, J. M., Tusie-Luna, T., Aguilar-Salinas, C. A., Villalpando, C. G., Orozco, L., Fornage, M., Tai, E. S., van Dam, R. M., Lehtimaki, T., Chaturvedi, N., Yokota, M., Liu, J., Reilly, D. F., McKnight, A. J., Kee, F., Jockel, K., McCarthy, M., Palmer, C. N. A., Vitart, V., Hayward, C., Simonsick, E., van Duijn, C. M., Lu, F., Qu, J., Hishigaki, H., Lin, X., Marz, W., Parra, E. J., Cruz, M., Gudnason, V., Tardif, J., Lettre, G., 't Hart, L. M., Elders, P. J. M., Damrauer, S. M., Kumari, M., Kivimaki, M., van der Harst, P., Spector, T. D., Loos, R. J. F., Province, M. A., Psaty, B. M., Brandslund, I., Pramstaller, P. P., Christensen, K., Ripatti, S., Widen, E., Hakonarson, H., Grant, S. F. A., Kiemeney, L. A. L. M., de Graaf, J., Loeffler, M., Kronenberg, F., Gu, D., Erdmann, J., Schunkert, H., Franks, P. W., Linneberg, A., Jukema, J. W., Khera, A., Mannikko, M., Jarvelin, M., Kutalik, Z., Cucca, F., Mook-Kanamori, D. O., van Dijk, K. W., Watkins, H., Strachan, D. P., Grarup, N., Sever, P., Poulter, N., Rotter, J., Dantoft, T. M., Karpe, F., Neville, M. J., Timpson, N. J., Cheng, C., Wong, T., Khor, C. C., Sabanayagam, C., Peters, A., Gieger, C., Hattersley, A. T., Pedersen, N. L., Magnusson, P. K. E., Boomsma, D., de Geus, E. J. C., Cupples, L. A., van Meurs, J. B. J., Ghanbari, M., Rsen, P. G., Huang, W., Kim, Y. J., Tabara, Y., Wareham, N. J., Langenberg, C., Zeggini, E., Kuusisto, J., Laakso, M., Ingelsson, E., Abecasis, G., Chambers, J. C., Kooner, J. S., de Vries, P. S., Morrison, A. C., North, K. E., Daviglus, M., Kraft, P., Martin, N. G., Whitfield, J. B., Abbas, S., Saleheen, D., Walters, R. G., Holmes, M., Black, C., Smith, B. H., Justice, A. E., Baras, A., Buring, J. E., Ridker, P. M., Chasman, D., Kooperberg, C., Wei, W., Jarvik, G. P., Namjou, B., Hayes, M. G., Ritchie, M. D., Jousilahti, P., Salomaa, V., Hveem, K., Asvold, B. O., Kubo, M., Kamatani, Y., Okada, Y., Murakami, Y., Thorsteinsdottir, U., Stefansson, K., Ho, Y., Lynch, J. A., Rader, D. J., Tsao, P. S., Chang, K., Cho, K., O'Donnell, C. J., Gaziano, J. M., Wilson, P., Rotimi, C. N., Hazelhurst, S., Ramsay, M., Trembath, R. C., van Heel, D. A., Tamiya, G., Yamamoto, M., Kim, B., Mohlke, K. L., Frayling, T. M., Hirschhorn, J. N., Kathiresan, S., Boehnke, M., Natarajan, P., Peloso, G. M., Brown, C. D., Morris, A. P., Assimes, T. L., Deloukas, P., Sun, Y., Willer, C. J., Yousri, N. A., Hunt, S. C.
Briefing: Assessing the impact of COVID-19 on the clinically extremely vulnerable population
Hodgson, K., Butler, J., Davies, A., Houston, S., Marszalek, K., Peytrignet, S., Piroddi, R., Wood, F., Deeny, S., Network Data Lab, Ball, W., Black, C., Blana, D., Dymiter, J., Gordon, S., Lumsden, J., Martin, A., Nath, M., Rzewuska, M., Sawhney, S., Scheliga, B., Wilde, K., Wozniak, A.
The Health Foundation. 32 pages
Books and Reports: Other Reports
Lack of Association Between GBA Mutations and Motor Complications in European and American Parkinson's Disease Cohorts
Maple-Grodem, J., Paul, K. C., Dalen, I., Ngo, K. J., Wong, D., Macleod, A. D., Counsell, C. E., Backstrom, D., Forsgren, L., Tysnes, O., Kusters, C. D. J., Fogel, B. L., Bronstein, J. M., Ritz, B., Alves, G.
Journal of Parkinson's Disease, vol. 11, no. 4, pp. 1569-1578
Examining variation in the measurement of multimorbidity in research: a systematic review of 566 studies
Iris Szu-Szu Ho, I., Azcoaga-Lorenzo, A., Akbari, A., Black, C., Davies, J., Hodgins, P., Khunti, K., Kadam, U. T., Lyons, R. A., McCowan, C., Mercer, S. W., Nirantharakumar, K., Guthrie, B.
The Lancet Public Health, vol. 6, no. 8, pp. e587-e597
Ocrelizumab not recommended in France for patients with primary progressive multiple sclerosis while recommended in England: a review comparing the assessment by HAS and NICE
Armoiry, X., Späth, H., Henaine, A., Dussart, C., Counsell, C., Connock, M.
Expert opinion on biological therapy, vol. 21, no. 6, pp. 741-747
The trans-ancestral genomic architecture of glycemic traits
Chen, J., Spracklen, C. N., Marenne, G., Varshney, A., Corbin, L. J., Luan, J., Willems, S. M., Wu, Y., Zhang, X., Horikoshi, M., Boutin, T. S., Magi, R., Waage, J., Li-Gao, R., Chan, K. H. K., Yao, J., Anasanti, M. D., Chu, A. Y., Claringbould, A., Heikkinen, J., Hong, J., Hottenga, J., Huo, S., Kaakinen, M. A., Louie, T., Maerz, W., Moreno-Macias, H., Ndungu, A., Nelson, S. C., Nolte, I. M., North, K. E., Raulerson, C. K., Ray, D., Rohde, R., Rybin, D., Schurmann, C., Sim, X., Southam, L., Stewart, I. D., Wang, C. A., Wang, Y., Wu, P., Zhang, W., Ahluwalia, T. S., Appel, E. V. R., Bielak, L. F., Brody, J. A., Burtt, N. P., Cabrera, C. P., Black, C., LifeLines Cohort Study, The Meta-Analysis of Glucose and Insulin-related Traits Consortium (MAGIC)
Cost-effectiveness and value of information analysis of multiple frequency bioimpedance devices for fluid management in people with chronic kidney disease having dialysis
Jacobsen, E., Cruickshank, M., Cooper, D., Marks, A., Brazzelli, M., Scotland, G.
Cost Effectiveness and Resource Allocation, vol. 19, 24
Early constipation predicts faster dementia onset in Parkinson’s disease
Camacho, M., MacLeod, A., Maple-Grødem, J., Evans, J., Breen, D., Cummings, G., Wijeyekoon, R., Greenland, J., Alves, G., Tysnes, O., Lawson, R., Barker, R. A., Williams-Gray, C.
Conversion of Urine Protein-Creatinine Ratio or Urine Dipstick Protein to Urine Albumin-Creatinine Ratio for Use in Chronic Kidney Disease Screening and Prognosis: An Individual Participant–Based Meta-analysis
Sumida, K., Nadkarni, G. N., Grams, M. E., Sang, Y., Ballew, S. H., Coresh, J., Matsushita, K., Surapaneni, A., Brunskill, N., Chadban, S. J., Chang, A. R., Cirillo, M., Daratha, K. B., Gansevoort, R. T., Garg, A. X., Iacoviello, L., Kayama, T., Konta, T., Kovesdy, C. P., Lash, J., Lee, B. J., Major, R., Metzger, M., Miura, K., Naimark, D. M., Nelson, R. G., Sawhney, S., Stempniewicz, N., Tang, M., Townsend, R. R., Traynor, J. P., Valdivielso, J. M., Wetzels, J., Polkinghorne, K. R., Heerspink, H. J., Chronic Kidney Disease Prognosis Consortium
Annals of Internal Medicine, vol. 173, no. 6, pp. 426-435
Validation of a UPDRS-/MDS-UPDRS-based definition of functional dependency for Parkinson's disease
Ramsay, N., MacLeod, A. D., Alves, G., Camacho, M., Forsgren, L., Lawson, R. A., Maple-Grødem, J., Tysnes, O., Williams-Gray, C. H., Yarnall, A. J., Counsell, C. E., Parkinson’s Incidence Cohorts Collaboration
Parkinsonism & Related Disorders, vol. 76, pp. 49-53
Ocrelizumab for Treating Patients with Primary Progressive Multiple Sclerosis: An Evidence Review Group Perspective of a NICE Single Technology Appraisal
Auguste, P., Colquitt, J., Connock, M., Loveman, E., Court, R., Ciccarelli, O., Counsell, C., Armoiry, X.
Using a knowledge exchange event to assess study participants' attitudes to research in a rapidly evolving research context
Beange, I., Kirkham, E. J., Fletcher-Watson, S., Iveson, M. H., Lawrie, S. M., Batty, G. D., Boardman, J. P., Deary, I. J., Black, C., Porteous, D. J., McIntosh, A. M.
Large expert-curated database for benchmarking document similarity detection in biomedical literature search
Brown, P., Zhou, Y., Tan, A. C., El-Esawi, M. A., Liehr, T., Blanck, O., Gladue, D. P., Almeida, G. M., Cernava, T., Sorzano, C. O., Yeung, A. W., Engel, M. S., Chandrasekaran, A. R., Muth, T., Staege, M. S., Daulatabad, S. V., Widera, D., Zhang, J., Meule, A., Honjo, K., Pourret, O., Yin, C. C., Zhang, Z., Cascella, M., Flegel, W. A., Goodyear, C. S., van Raaij, M. J., Bukowy-Bieryllo, Z., Campana, L. G., Kurniawan, N. A., Lalaouna, D., Hüttner, F. J., Ammerman, B. A., Ehret, F., Cobine, P. A., Tan, E. C., Han, H., Xia, W., McCrum, C., Dings, R. P., Marinello, F., Nilsson, H., Nixon, B., Voskarides, K., Yang, L., Costa, V. D., Johnston, M., Mangoni, A. A., Speakman, J. R., Macleod, A., RELISH Consortium
Consensus Statement on Public Involvement and Engagement with Data Intensive Health Research
Aitken, M., Tully, M. P., Porteous, C., Denegri, S., Cunningham-Burley, S., Banner, N., Black, C., Burgess, M., Cross, L., van Delden, J. J., Ford, E., Fox, S., Fitzpatrick, N. K., Gallacher, K., Goddard, C., Hassan, L., Jamieson, R., Jones, K. H., Kaarakainen, M., Lugg-Widger, F., McGrail, K., McKenzie, A., Moran, R., Murtagh, M. J., Oswald, M., Paprica, A., Perrin, N., Richards, E. V., Rouse, J., Webb, J., Willison, D. J.
International Journal of Population Data Science, vol. 4, no. 1, 6
Change in albuminuria and subsequent risk of end-stage kidney disease: an individual participant-level consortium meta-analysis of observational studies
Coresh, J., Heerspink, H. J. L., Sang, Y., Matsushita, K., Arnlov, J., Astor, B. C., Black, C., Brunskill, N. J., Carrero, J., Feldman, H. I., Fox, C. S., Inker, L. A., Ishani, A., Ito, S., Jassal, S., Konta, T., Polkinghorne, K., Romundstad, S., Solbu, M. D., Stempniewicz, N., Stengel, B., Tonelli, M., Umesawa, M., Waikar, S. S., Wen, C., Wetzels, J. F. M., Woodward, M., Grams, M. E., Kovesdy, C. P., Levey, A. S., Gansevoort, R. T., Chronic Kidney Disease Prognosis Consortium and Chronic Kidney Disease Epidemiology Collaboration
The lancet. Diabetes & endocrinology, vol. 7, no. 2, pp. 115-127
Impact of educational attainment on the association between social class at birth and multimorbidity in middle age in the Aberdeen Children of the 1950s cohort study
Johnston, M. C., Black, C., Mercer, S. W., Prescott, G. J., Crilly, M. A.
Genome-wide interaction study of a proxy for stress-sensitivity and its prediction of major depressive disorder
Arnau-Soler, A., Adams, M. J., Generation Scotland, Major Depressive Disorder Working Group of the Psychiatric Genomics Consortium, Hayward, C., Thomson, P. A., Porteous, D., Campbell, A., Smith, B. H., Black, C., Padmanabhan, S., McIntosh, A., Wray, N. R., Ripke, S., Mattheisen, M., Trzaskowski, M., Byrne, E. M., Abdellaoui, A., Agerbo, E., Air, T. M., Andlauer, T. F., Bacanu, S. A., Bækvad-Hansen, M., Beekman, A. T., Bigdeli, T. B., Binder, E. B., Blackwood, D. H., Bryois, J., Buttenschøn, H. N., Bybjerg-Grauholm, J., Cai, N., Castelao, E., Christensen, J. H., Clarke, T. K., Coleman, J. R., Colodro-Conde, L., Couvy-Duchesne, B., Craddock, N., Crawford, G. E., Davies, G., Deary, I. J., Degenhardt, F., Derks, E. M., Direk, N., Dolan, C. V., Dunn, E. C., Eley, T. C., Escott-Price, V., Kiadeh, F. F. H., Finucane, H. K., Forstner, A. J., Frank, J.
Comparative effectiveness of beta-interferons and glatiramer acetate for relapsing-remitting multiple sclerosis: systematic review and network meta-analysis of trials including recommended dosages
Melendez-Torres, G. J., Armoiry, X., Court, R., Patterson, J., Kan, A., Auguste, P., Madan, J., Counsell, C., Ciccarelli, O., Clarke, A.
Association of glucocerebrosidase polymorphisms and mutations with dementia in incident Parkinson's disease
Lunde, K. A., Chung, J., Dalen, I., Pedersen, K. F., Linder, J., Domellöf, M. E., Elgh, E., MacLeod, A., Tzoulis, C., Larsen, J. P., Tysnes, O., Forsgren, L., Counsell, C. E., Alves, G., Maple-Grødem, J.
Alzheimer's and Dementia, vol. 14, no. 10, pp. 1293-1301
Acute kidney injury in the UK: a replication cohort study of the variation across three regional populations
Sawhney, S., Robinson, H. A., Van der Veer, S. N., Hounkpatin, H. O., Scale, T. M., Chess, J. A., Peek, N., Marks, A., Davies, G. I., Fraccaro, P., Johnson, M. J., Lyons, R. A., Nitsch, D., Roderick, P. J., Halbesma, N., Miller-Hodges, E., Black, C., Fraser, S.
Predicting timing of clinical outcomes in patients with chronic kidney disease and severely decreased glomerular filtration rate
Grams, M. E., Sang, Y., Ballew, S. H., Carrero, J. J., Djurdjev, O., Heerspink, H. J., Ho, K., Ito, S., Marks, A., Naimark, D., Nash, D. M., Navaneethan, S. D., Sarnak, M., Stengel, B., Visseren, F. L., Wang, A. Y., Köttgen, A., Levey, A. S., Woodward, M., Eckardt, K., Hemmelgarn, B., Coresh, J.
Kidney International, vol. 93, no. 6, pp. 1442-1451
Incidence of and Risk Factors Associated With Biochemically Detected and Hospitalised Acute Kidney Injury in Patients Prescribed Renin Angiotensin System Inhibitors
Mark, P., Papworth, R., Ramparsad, N., Tomlinson, L., Sawhney, S., Black, C., Marks, A., McConnachie, A., McCowan, C.
Short and long-term clinical outcomes of use of beta-interferon or glatiramer acetate for people with clinically isolated syndrome: a systematic review of randomised controlled trials and network meta-analysis
Armoiry, X., Kan, A., Melendez-Torres, G. J., Court, R., Sutcliffe, P., Auguste, P., Madan, J., Counsell, C., Clarke, A.
Journal of Neurology, vol. 265, no. 5, pp. 999-1009
Fraser, S., Sawhney, S., Marks, A., Roderick, P. J.
Kidney Health Inequalities in the United Kingdom: Reflecting on the Past, Reducing in the Future. Caskey, F., Dreyer, G. (eds.). Kidney Research UK, pp. 65
Chapters in Books, Reports and Conference Proceedings: Chapters
Life-course determinants of cognitive reserve (CR) in cognitive aging and dementia: a systematic literature review
Chapko, D., McCormack, R., Black, C., Staff, R., Murray, A.
Aging & Mental Health, vol. 22, no. 8, pp. 915-926
Clinical effectiveness and cost-effectiveness of beta-interferon and glatiramer acetate for treating multiple sclerosis: systematic review and economic evaluation
Melendez-Torres, G. J., Auguste, P., Armoiry, X., Maheswaran, H., Court, R., Madan, J., Kan, A., Lin, S., Counsell, C., Patterson, J., Rodrigues, J., Ciccarelli, O., Fraser, H., Clarke, A.
Health Technology Assessment, vol. 21, no. 52, pp. 1-352
Genome-wide pleiotropy between Parkinson disease and autoimmune diseases
Witoelar, A., Jansen, I. E., Wang, Y., Desikan, R. S., Gibbs, J. R., Blauwendraat, C., Thompson, W. K., Hernandez, D. G., Djurovic, S., Schork, A. J., Bettella, F., Ellinghaus, D., Franke, A., Lie, B. A., McEvoy, L. K., Karlsen, T. H., Lesage, S., Morris, H. R., Brice, A., Wood, N. W., Heutink, P., Hardy, J., Singleton, A. B., Dale, A. M., Gasser, T., Andreassen, O. A., Sharma, M., Nalls, M. A., Plagnol, V., Sheerin, U. M., Saad, M., Simon-Sanchez, J., Schulte, C., Sveinbjornsdottir, S., Arepalli, S., Barker, R., Ben-Shlomo, Y., Berendse, H. W., Berg, D., Bhatia, K., De Bie, R. M., Biffi, A., Bloem, B., Bochdanovits, Z., Bonin, M., Bras, J. M., Brockmann, K., Brooks, J., Burn, D. J., Counsell, C., International Parkinson's Disease Genomics Consortium (IPDGC), United Kingdom Brain Expression Consortium (UKBEC) Investigators, North American Brain Expression Consortium (NABEC)