FAcSS PhD MPhil
Professor in Health Services Research
- About
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- Email Address
- louise.locock@abdn.ac.uk
- Office Address
Health Services Research Unit
University of AberdeenRoom 204
2nd Floor, Health Sciences Building
Foresterhill
Aberdeen
AB25 2ZD- School/Department
- School of Medicine, Medical Sciences and Nutrition
Biography
I joined the Health Services Research Unit (now Aberdeen Centre for Evaluation, ACE) in 2017 as Professor in Health Services Research. Previously I spent 14 years with the Health Experiences Research Group, Nuffield Department of Primary Care Health Sciences, University of Oxford, where I was Director of Applied Research. I am a qualitative social science researcher interested in personal experience of health and illness; patient-centred quality improvement and co-design; patient and family involvement in research and care; remote and rural healthcare. A major recent focus of my work has been how we can better use different types of patient experience data to improve care.
As of January 2024 I am now partially retired, and work mostly on Wednesdays and Thursdays only
Qualifications
- MA Modern Langauges (French and German)1984 - University of Oxford
- M Phil Comparative Social Policy1995 - University of Oxford
- PhD Explicit rationing within the NHS quasi-market: the experience of health authority purchasers, 1996-971998 - London School of Economicshttp://etheses.lse.ac.uk/98/
Memberships and Affiliations
- Internal Memberships
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School Patient and Public Involvement working group member
- External Memberships
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Fellow of the Academy of Social Sciences
Member of the MND Association Healthcare Research Advisory Panel
Board Member, Care Opinion
- Research
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Research Overview
Patient and staff experience; quality improvement using patient experience data; patient and public involvement; experiences of research participation (particularly clinical trials and biobanking); qualitative methods; motor neurone disease and other neurological conditions; long term conditions; pregnancy and parenting experiences; rural and remote health
Research Areas
Research Specialisms
- Health Studies
- Health and Social Care
- Social Policy
Our research specialisms are based on the Higher Education Classification of Subjects (HECoS) which is HESA open data, published under the Creative Commons Attribution 4.0 International licence.
Current Research
From 2024-2029 I am co-investigator on a new interdisclinary programme grant funded by the Chief Scientist Office, Building Rural-Urban healthCare Equity for Scotland (BRUCES) – a multi-methods research programme in cancer, musculoskeletal health and frailty. The programme is co-led by Prof Peter Murchie and Dr Rosemary Hollick; I will be co-leading the qualitative work package with Prof Lorna Philip from the Geography Department.
I am co-investigator on a UK-wide study of pregnancy and multi-morbidity led by PI Prof Krish Nirantharakumar, University of Birmingham (MuM-PreDiCT). At Aberdeen we have jointly led a programme of interviews with people with multiple conditions who are or have recently been pregnant, partners and health professionals. I am also a co-investigator on Dr Mairead Black's NIHR study to develop a decision-aid around elective caesarean birth planning, Plan-A.
I'm also involved in the NIHR Health Determinants Research Collaboration (Aberdeen), a partnership led by Aberdeen City Council.
Past Research
As principal investigator I have led two studies on recruitment and retention of healthcare staff in remote and rural areas. One, funded by the Chief Scientist Office of Scotland, investigated the motivations and experiences of doctors with regard to practising remote and rural medicine with a view to enhancing recruitment and retention of rural doctors in Scotland. The second study, funded by the NIHR, focused on community-led initiatives to improve healthcare recruitment and retention in remote and rural areas, in both Scotland and England.
I was co-investigator on two Versus Arthritis programmes of research, one on PAtient-centred Care for FIbromyalgia: New pathway Design’ (PACFIND), led by Professor Gary MacFarlane and one on Vasculitis (VOICES) led by Dr Rosemary Hollick. Both studies have also produced new Health Experiences Insights modules on Fibromyalgia and Systemic Vasculitis.
As a co-investigator, I was involved in a study on experiences of Long COVID, led by Prof Kate Hunt at the University of Stirling and funded by the Chief Scientist Office, and a linked study funded by NIHR on family experiences of COVID, led by Prof Sue Ziebland at the University of Oxford, and a further ESRC/UKRI funded study also led by Sue Ziebland, 'Experiences of COVID-19 and recovery: learning from polyphonic voices for communities, policy makers and health and social care providers'. All three studies have produced new Health Experiences Insights modules.
Other recently completed studies include:
ACORN (Asynchronous Consultation Research for the NHS), examining the role of asynchronous consultation methods in secondary care after COVID-19, funded by the Health Foundation.(Joint PI with Prof Craig Ramsay)
An inter-disciplinary study of funerals as a form of care and how they have been affected by the pandemic, led by Prof Vikki Entwistle.
A study based in NHS Grampian on how staff feel about and respond to online patient feedback on Care Opinion Scotland. A wider qualitative study on Care Opinion Scotland with a PhD studentship funded by THIS Institute, Cambridge, ended in 2023 (with PhD student Emma Berry, viva passed with minor corrections December 2023).
The experiences of families with inherited motor neurone disease. The Motor Neurone Disease Association awarded funding for 2019-22 to make interviews conducted as part of this PhD into a public resource. (With PhD student Jade Howard, viva passed with minor corrections March 2023).
I was also co-investigator on two further Oxford-led studies:
SuMMIT-D: support through mobile messaging and digital health technology for diabetes. NIHR Programme Grant for Applied Research (PI Andrew Farmer)
PURSUE: Understanding experiences of urogynaecological conditions and health services. NIHR Policy Research Programme (PIs Abi McNiven and Francine Toye)
and two studies led by Manchester Metropolitan:
Bridging the translation gap between learning disability policy and practice in search of flourishing lives. NIHR Schhol for Social Care Research. (PI Sara Ryan)
Understanding and using people’s experiences of social care to guide service improvements:could an effective and efficient co-design approach be translated from health to social care? NIHR Health Service and Delivery Research (PI Sara Ryan)
As Principal Investigator I completed the US-PEx project, a study funded by the National Institute for Health Research Health Service and Delivery Research programme 14/156/06. This project aimed to get a better understanding of how NHS frontline staff use different types of patient feedback to improve health services and develop tools to help them make better use of these data.
I was also co-investigator on the INQUIRE project led by Professor John Powell at the University of Oxford on how the NHS can use online patient feedback.
During 2020-21 i collaborated with Prof Judith Smith and Emily Burn at the University of Birmingham and Dr Becks Fisher at the Health Foundation on a study of narrative accounts of primary care practitioners in a time of Covid-19.
A study in collaboration with the University of Leicester and THIS Institute, University of Cambridge, on Developing A Visual Identification Method For People with Cognitive Impairment in Hospital (DA VINCI) has recently been completed.
Supervision
My current supervision areas are: Applied Health Sciences.
Please note that from 1 January 2024 I am partially retired and will no longer be taking on new PhD students.
- Teaching
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Teaching Responsibilities
I currently supervise 3 PhD students, and teach on using qualitative patient experience research for quality improvement.
From January 2024 I am partially retired and no longer taking on new PhD or Masters projects
- Publications
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Page 2 of 2 Results 101 to 163 of 163
What patients do and their impact on implementation: An ethnographic study of participatory quality improvement projects in English acute hospitals
Journal of Health Organization & Management, vol. 30, no. 2, pp. 258-278Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.1108/jhom-02-2015-0027
‘I knew before I was told’: Breaches, cues and clues in the diagnostic assemblage
Social Science & Medicine, vol. 154, pp. 85-92Contributions to Journals: Articles- [ONLINE] http://www.ncbi.nlm.nih.gov/pubmed/26945546
- [ONLINE] DOI: https://doi.org/10.1016/j.socscimed.2016.02.037
Understanding tensions and identifying clinician agreement on improvements to early-stage chronic kidney disease monitoring in primary care: a qualitative study
BMJ Open, vol. 6, no. 3, e010337Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.1136/bmjopen-2015-010337
- [OPEN ACCESS] http://aura.abdn.ac.uk/bitstream/2164/9397/1/e010337.full.pdf
A Response to the Open Peer Commentaries on "Young People's Experiences of Participation in Clinical Trials: Reasons for Taking Part".
American Journal of Bioethics, vol. 16, no. 2, pp. W10-W12Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.1080/15265161.2015.1125968
An open letter to The BMJ editors on qualitative research.
BMJ (Clinical research ed.), vol. 352, i563Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.1136/bmj.i563
The impact of self-harm by young people on parents and families: a qualitative study
BMJ Open, vol. 6, no. 1, e009631Contributions to Journals: ArticlesYoung People's Experiences of Participation in Clinical Trials: Reasons for Taking Part.
American Journal of Bioethics, vol. 15, no. 11, pp. 3-13Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.1080/15265161.2015.1088974
Support for mothers and their families after life-threatening illness in pregnancy and childbirth: a qualitative study in primary care
The British Journal of General Practice, vol. 65, no. 638, pp. e563-e569Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.3399/bjgp15x686461
"As a parent, there is no rulebook": a new resource for parents and carers of young people who self-harm.
The lancet. Psychiatry, vol. 2, no. 7, pp. 577-579Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.1016/s2215-0366(15)00182-0
Whose evidence is it anyway?
Evidence & Policy, vol. 11, no. 2, pp. 145-148Contributions to Journals: ArticlesMaternal critical care: what can we learn from patient experience? A qualitative study.
BMJ Open, vol. 5, no. 4, e006676Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.1136/bmjopen-2014-006676
- [OPEN ACCESS] http://aura.abdn.ac.uk/bitstream/2164/9402/1/e006676.full.pdf
Patients and staff as codesigners of healthcare services
BMJ, vol. 350, g7714Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.1136/bmj.g7714
Is self monitoring of blood pressure in pregnancy safe and effective?
BMJ (Clinical research ed.), vol. 349, pp. 1-4Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.1136/bmj.g6616
Using a national archive of patient experience narratives to promote local patient-centered quality improvement:: an ethnographic process evaluation of 'accelerated' experience-based co-design
Journal of Health Services Research & Policy, vol. 19, no. 4, pp. 200-207Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.1177/1355819614531565
Experiences of the quality of care of women with near-miss maternal morbidities in the UK
BJOG-An International Journal of Obstetrics and Gynaecology, vol. 121, no. Suppl 4, pp. 20-23Contributions to Journals: ArticlesPartner Experiences of “Near-Miss” Events in Pregnancy and Childbirth in the UK: A Qualitative Study
PloS ONE, vol. 9, no. 4, pp. 1-8Contributions to Journals: ArticlesCollecting data on patient experience is not enough: they must be used to improve care
BMJ (Clinical research ed.), vol. 348, pp. 1-4Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.1136/bmj.g2225
Testing accelerated experience-based co-design: a qualitative study of using a national archive of patient experience narrative interviews to promote rapid patient-centred service improvement
Health Services and Delivery Research, vol. 2, no. 4, pp. 1-150Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.3310/hsdr02040
- [OPEN ACCESS] http://aura.abdn.ac.uk/bitstream/2164/9392/1/3003119.pdf
Life interrupted and life regained? Coping with stroke at a young age
International Journal of Qualitative Studies in Health and Well-being, vol. 9, no. 1, pp. 1-12Contributions to Journals: ArticlesPersonal identity and the role of 'carer' among relatives and friends of people with multiple sclerosis
Social Science & Medicine, vol. 96, pp. 78-85Contributions to Journals: ArticlesThe development of a patient-centred experience/outcomes of care questionnaire for people with chronic conditions
20th Annual Conference of the International Society for Quality of Life Research, pp. 26-27Contributions to Journals: AbstractsUnderstanding health care needs of people with chronic conditions: patient experiences, outcomes and quality of life
20th Annual Conference of the International Society for Quality of Life Research, pp. 57-57Contributions to Journals: AbstractsHealth care: Bring on the evidence
Nature, vol. 501, no. 7466, pp. 160-161Contributions to Journals: Comments and DebatesBiographical value: towards a conceptualisation of the commodification of illness narratives in contemporary healthcare
Sociology of Health & Illness, vol. 35, no. 6, pp. 891-905Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.1111/1467-9566.12001
Non-Focal Neurological Symptoms Associated with Classical Presentations of Transient Ischaemic Attack: Qualitative Analysis of Interviews with Patients
PloS ONE, vol. 8, no. 6, pp. 1-5Contributions to Journals: ArticlesElectronic fetal monitoring during labour and anxiety levels in women taking part in a RCT
British Journal of Midwifery, vol. 21, no. 6, pp. 394-403Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.12968/bjom.2013.21.6.394
Stroke survivors' experiences of the fundamentals of care: A qualitative analysis
International Journal of Nursing Studies, vol. 50, no. 3, pp. 392-403Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.1016/j.ijnurstu.2012.09.017
Research shapes policy: but the dynamics are subtle
Public Money & Management, vol. 33, no. 1, pp. 9-14Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.1080/09540962.2013.744869
Women's experience of transfer from midwifery unit to hospital obstetric unit during labour: a qualitative interview study.
BMC Pregnancy and Childbirth, vol. 12, 129Contributions to Journals: ArticlesThe use of secondary qualitative analysis to establish domains of patient-centred care in people with long term conditions
Quality of Life Research, vol. 21, pp. 62-62Contributions to Journals: ArticlesMetaphoric language and the articulation of emotions by people affected by motor neurone disease.
Chronic Illness, vol. 8, pp. 201-213Contributions to Journals: Articles- [ONLINE] http://www.ncbi.nlm.nih.gov/pubmed/22457342
- [ONLINE] DOI: https://doi.org/10.1177/1742395312443390
Imagined futures: How experiential knowledge of disability affects parents' decision making about fetal abnormality
Health Expectations, vol. 15, pp. 139-156Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.1111/j.1369-7625.2011.00672.x
Being differently the same: The mediation of identity tensions in the sharing of illness experiences
Social Science & Medicine, vol. 74, pp. 546-553Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.1016/j.socscimed.2011.10.036
Personal experiences of taking part in clinical trials: a qualitative study
Patient Education and Counseling, vol. 84, pp. 303-309Contributions to Journals: Articles- [ONLINE] http://www.ncbi.nlm.nih.gov/pubmed/21737226
- [ONLINE] DOI: https://doi.org/10.1016/j.pec.2011.06.002
Personal benefit, or benefiting others? Deciding whether to take part in clinical trials
Contemporary Clinical Trials, vol. 8, pp. 85-93Contributions to Journals: Articles- [ONLINE] http://www.ncbi.nlm.nih.gov/pubmed/21163854
- [ONLINE] DOI: https://doi.org/10.1177/1740774510392257
Examining the role of patients' experiences as a resource for choice and decision-making in health care: a creative, inter-disciplinary mixed method study in digital health
NIHR Journals library PGfARContributions to Journals: Articles- [ONLINE] http://www.ipexonline.org/
'All in the same boat'? Patient and carer attitudes to peer support and social comparison in Motor Neurone Disease (MND)
Social Science & Medicine, vol. 71, no. 8, pp. 1498-1505Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.1016/j.socscimed.2010.06.043
Women's accounts of the physical sensation of chorionic villus sampling and amniocentesis: expectations and experience.
Midwifery, vol. 26, pp. 64-75Contributions to Journals: Articles- [ONLINE] http://www.ncbi.nlm.nih.gov/pubmed/18485550
- [ONLINE] DOI: https://doi.org/10.1016/j.midw.2008.02.002
Commentaries
International Journal of Therapy and Rehabilitation, vol. 17, pp. 330Contributions to Journals: ArticlesNo magic targets! Changing clinical practice to become more evidence based
Health Care Manage Rev, vol. 35, no. 1, pp. 2-12Contributions to Journals: Articles- [ONLINE] http://www.ncbi.nlm.nih.gov/pubmed/20010008
- [ONLINE] DOI: https://doi.org/10.1097/HMR.0b013e3181c88e79
Renewing policy to support evidence-based health care
Public Administration, vol. 87, no. 4, pp. 837-852Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.1111/j.1467-9299.2009.01796.x
Biographical disruption, abruption and repair in the context of Motor Neurone Disease
Sociol Health Illn, vol. 31, no. 7, pp. 1043-1058Contributions to Journals: Articles- [ONLINE] http://www.ncbi.nlm.nih.gov/pubmed/19659736
- [ONLINE] DOI: https://doi.org/10.1111/j.1467-9566.2009.01176.x
Making it all normal: the role of the internet in problematic pregnancy
Qualitative health research, vol. 19, no. 10, pp. 1476-1484Contributions to Journals: Articles- [ONLINE] http://www.ncbi.nlm.nih.gov/pubmed/19805809
- [ONLINE] DOI: https://doi.org/10.1177/1049732309348368
Women's responses to nausea and vomiting in pregnancy.
Midwifery, vol. 24, pp. 143-152Contributions to Journals: Articles- [ONLINE] http://www.ncbi.nlm.nih.gov/pubmed/17316935
- [ONLINE] DOI: https://doi.org/10.1016/j.midw.2006.12.001
The effect of joint interviewing on the performance of gender
Field Methods, vol. 20, pp. 107-128Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.1177/1525822X07313837
Parents' experiences of universal screening for haemoglobin disorders: implications for practice in a new genetics era.
The British Journal of General Practice, vol. 58, pp. 161-168Contributions to Journals: Articles- [ONLINE] http://www.ncbi.nlm.nih.gov/pubmed/18318970
- [ONLINE] DOI: https://doi.org/10.3399/bjgp08X277276
'Just a bystander'? Men's place in the process of fetal screening and diagnosis.
Social Science & Medicine, vol. 62, pp. 1349-1359Contributions to Journals: Articles- [ONLINE] http://www.ncbi.nlm.nih.gov/pubmed/16165260
- [ONLINE] DOI: https://doi.org/10.1016/j.socscimed.2005.08.011
The parents journey: continuing a pregnancy after a diagnosis of Patau's syndrome (vol 331, pg 1186, 2005)
BMJ, vol. 331, no. 7530, pp. 1430-1430Contributions to Journals: Reviews of Books, Films and ArticlesThe parents' journey: continuing a pregnancy after a diagnosis of Patau's syndrome.
BMJ, vol. 331, pp. 1186-1189Contributions to Journals: Articles- [ONLINE] http://www.ncbi.nlm.nih.gov/pubmed/16293841
- [ONLINE] DOI: https://doi.org/10.1136/bmj.331.7526.1186
Managing or managed? Experience of general practitioners in English Primary Care Groups and Trusts.
Health Services Management Research, vol. 17, pp. 24-35Contributions to Journals: Articles- [ONLINE] http://www.ncbi.nlm.nih.gov/pubmed/15006084
- [ONLINE] DOI: https://doi.org/10.1258/095148404322772705
Prescribing organizational change--what works for whom?
World views on Evidence Based Nursing, vol. 1, pp. 203-205Contributions to Journals: Editorials- [ONLINE] http://www.ncbi.nlm.nih.gov/pubmed/17166147
- [ONLINE] DOI: https://doi.org/10.1111/j.1524-475X.2004.04080.x
Evidence-based medicine and the implementation gap
Health (London, England : 1997), vol. 7, pp. 311-330Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.1177/1363459303007003004
Redesigning health care: new wine from old bottles?
Journal of Health Services Research & Policy, vol. 8, pp. 120-122Contributions to Journals: Articles- [ONLINE] http://www.ncbi.nlm.nih.gov/pubmed/12820675
- [ONLINE] DOI: https://doi.org/10.1258/135581903321466102
Waiting times. Catch up, keep up.
Health Service Journal, vol. 113, pp. 24-27Contributions to Journals: ArticlesRedesigning mental health services: lessons on user involvement from the Mental Health Collaborative.
Health Expectations, vol. 6, pp. 60-71Contributions to Journals: ArticlesHealthcare redesign: meaning, origins and application.
Quality & safety in health care, vol. 12, pp. 53-57Contributions to Journals: ArticlesNo magic targets! Changing clinical practice to become more evidence based
Health Care Manage Rev, vol. 27, pp. 35-47Contributions to Journals: ArticlesClosing the gap between research and practice in health: Lessons from a clinical effectiveness initiative
Public Management Review, vol. 4, pp. 45-61Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.1080/14616670110101690
The commissioning process in the NHS: The theory and application
Public Management Review, vol. 4, pp. 209-229Contributions to Journals: Articles- [ONLINE] DOI: https://doi.org/10.1080/14616670210130552
Understanding the role of opinion leaders in improving clinical effectiveness.
Social Science & Medicine, vol. 53, pp. 745-757Contributions to Journals: ArticlesCommissioning. When push comes to shove.
Health Service Journal, vol. 111, pp. 28-29Contributions to Journals: ArticlesImplementation of evidence-based medicine: evaluation of the Promoting Action on Clinical Effectiveness programme.
Journal of Health Services Research & Policy, vol. 6, pp. 23-31Contributions to Journals: Articles- [ONLINE] http://www.ncbi.nlm.nih.gov/pubmed/11219356
- [ONLINE] DOI: https://doi.org/10.1258/1355819011927161
The changing nature of rationing in the UK national health service
Public Administration, vol. 78, pp. 91-109Contributions to Journals: Articles