Understanding the lived experience of Neuropathic Pain and improving its assessment - Work Package 2 of the Partnership for Assessment and Investigation of Neuropathic Pain: Studies Tracking Outcomes, Risks and Mechanisms (PAINSTORM) project.
Duration: 06/06/2022 to 06/07/2025
Funder: Medical Research Council (MRC), Economic and Social Research Council (ESRC), Biotechnology and Biological Sciences Research Council (BBSRC), Versus Arthritis, Eli Lilly, Medical Research Foundation
Chief investigator: Dr Kathryn Martin
Other co-investigators: Dr Katie Allan
Project Summary
Neuropathic Pain (NeuP) affects 8% of the population and its prevalence is increasing due to the ageing population, diabetes epidemic and enhanced cancer survival. Pain is an unpleasant sensory and emotional experience that can have a significant impact on a person's quality of life, general health, psychological health, and social and economic wellbeing (NICE, 2017). Neuropathic Pain is a type of persistent (or chronic) pain caused by problems with the nervous system. What is Neuropathic Pain?
NeuP has a major negative impact on quality of life and current management options are inadequate due to poor efficacy and tolerability.
Work Package 2 (Improving assessment of NeuP and its impact on daily life) within the PAINSTORM project specifically aims to explore the lived experience of people living with NeuP, as well as assessment measures and technologies to ensure they are meaningful to people with NeuP and contribute to informing clinical practice.
The results from the current study will feed into further developments of more person-centred assessments that will be implemented later on for some subsets of the PAINSTORM cohorts.
We are currently recruiting participants to take part in understanding the lived experience of Neuropathic Pain and improving its assessment.
- Do you live with Neuropathic Pain?
We would be particularly interested in hearing from you if you live with Neuropathic Pain and:
• Diabetic polyneuropathy,
• Chemotherapy-induced neuropathy
• HIV-induced neuropathy
We want to understand what it's like for you living with Neuropathic Pain. We also want to know if the healthcare professionals looking after you ask about or measure your pain, and how they do this.
- Would you be willing to take part in a telephone interview and two focus groups that last around one hour each?
These conversations will help us to understand what it's like to live with Neuropathic Pain.
You can get further information about the study below and you can contact us by email to register your interest in participating . We'll then get in touch with a brief questionnaire which will help us to identify participants for interviews and focus groups.