Designing and providing information support materials for urological cancer patients

Designing and providing information support materials for urological cancer patients

The aim of this project was to provide wide-ranging practical recommendations for the design and provision of information packages for urological cancer patients.

The first phase of the project involved a critical interpretative synthesis of the relevant research literature. The aim of this synthesis was to provide a critical overview of the literature related to the design and provision of patient information, and to produce a theoretical framework, which could be used to inform the creation of a series of information guides for patients.

In the second phase of the project, participant observation of clinical consultations and semi-structured interviews with patients and health professionals was conducted, investigating the provision of information, use of existing information materials, and underlying communication practices.

Contacts

Status

Completed

Publications

Kazimierczak, KA. & Skea, ZC. (2015). ''I've used the word cancer but it's actually good news': discursive performativity of cancer and the identity of urological cancer services'. Sociology of Health & Illness, vol 37, no. 3, pp. 340-354.

Kazimierczak KA, Skea ZC, Dixon-Woods M, Entwistle VA, Feldman-Stewart D, N'Dow J, MacLennan S. Provision of cancer information as a "support for navigating the knowledge landscape": findings from a critical interpretive literature synthesis. Eur J Oncol Nurs 2013;17(3):360-9.

Kazimierczak, KA., Skea, ZC., MacLennan, S. & N'Dow, JMO. (2011). 'Concepts of information provision in cancer care: a critical interpretive synthesis of literature'. Medical Encounter, vol 25, no. 3, pp. 63.